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<p class="MsoNormal"><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D">Scientific journals’ lock on new studies has ignited tension for years. When it comes to access for people with rare diseases, it becomes an ethical issue
 too.<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D"><o:p> </o:p></span></p>
<p class="MsoNormal"><b><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D">Read about</span></b><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D"> the Twitter storm with regards to the tweet
 by William Gunn, Elsevier’s director of scholarly communications:<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D"><o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D">“Yes, everyone should have rainbows, unicorns, & puppies delivered to their doorstep by volunteers. Y’all keep wishing for that, I’ll keep working on producing
 the best knowledge and distributing it as best we can.” <o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D"><o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D"><a href="https://slate.com/technology/2018/08/who-gets-to-read-the-research-taxpayers-fund.html">https://slate.com/technology/2018/08/who-gets-to-read-the-research-taxpayers-fund.html</a>
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D"><o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D"><o:p> </o:p></span></p>
<p class="MsoNormal" style="background:white"><b><span lang="EN-GB" style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Dr Leti Kleyn</span></b><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Programme Officer: Humanities & STEM Education</span><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Science Advisory Programme</span><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span lang="EN-GB" style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA"> </span><span style="font-size:10.5pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA"><img border="0" width="184" height="75" id="Picture_x0020_1" src="cid:image001.jpg@01D43DF3.AAC4ABB0" alt="cid:image002.jpg@01D3D561.C8D9D760"></span><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA"> </span><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Office Switchboard Tel: <a href="tel:+27%2012%20349%206600" target="_blank"><span style="color:#1155CC">+27
 12 349 6600</span></a></span><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Tel: </span><u><span style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1155CC;mso-fareast-language:EN-ZA">+27
 12 349 6651</span></u><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span lang="EN-US" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;background:white;mso-fareast-language:EN-ZA">Fax: +27 </span><span style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">086
 4155703</span><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Cell: </span><u><span style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1155CC;mso-fareast-language:EN-ZA">+27
 82 347 9982</span></u><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Email: </span><span lang="EN-US" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA"> </span><u><span lang="EN-US" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1155CC;background:white;mso-fareast-language:EN-ZA"><a href="mailto:leti@assaf.org.za" target="_blank">leti@assaf.org.za</a></span></u><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span style="font-size:9.0pt;font-family:"Arial",sans-serif;color:#222222;mso-fareast-language:EN-ZA"> </span><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">1st Floor Block A, The Woods,
<a href="https://maps.google.com/?q=41+De+Havilland+Crescent&entry=gmail&source=g" target="_blank">
<span style="color:blue">41 De Havilland Crescent</span></a>,</span><span lang="EN-US" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA"> </span><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#44546A;mso-fareast-language:EN-ZA">Persequor</span><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">
 Park</span><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Meiring Naudé Road,</span><span lang="EN-US" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA"> </span><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Lynnwood
 0020,</span><span lang="EN-US" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA"> </span><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Pretoria,
 South Africa.</span><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal" style="background:white"><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">PO Box 72135,</span><span lang="EN-US" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA"> </span><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Lynnwood
 Ridge 0040,</span><span lang="EN-US" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA"> </span><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Pretoria,</span><span lang="EN-US" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA"> </span><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">South
 Africa.</span><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal"><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#1F497D;mso-fareast-language:EN-ZA">Website: </span><span lang="EN-GB" style="font-size:9.0pt;font-family:"Century Gothic",sans-serif;color:#0000CC;mso-fareast-language:EN-ZA"><a href="http://www.assaf.org.za/" target="_blank"><span style="color:#0000CC">www.assaf.org.za</span></a></span><span style="color:#44546A;mso-fareast-language:EN-ZA"><o:p></o:p></span></p>
<p class="MsoNormal"><span style="color:#1F497D;mso-fareast-language:EN-ZA"><o:p> </o:p></span></p>
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